NEVER LOSE FAITH – It must be Karma!

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My appointment for my heart scan was this morning and my breathing was noticeably better for the exercising and for following the advice in the book I have been reviewing so  The 10-Step Program  is definitely working YEH!! I used the breathing techniques that I learnt from the book and emptied my lungs as much as possible to fill with fresh oxygen air and emptied them for the scan. They saw everything this time and said it was quite 835e9a0fd02769f448d4e0120a38af3ceasy to do. I am crossing my fingers and toes that the scan I had on my heart is OK and green to go for any procedures. A blinking general anesthetic is impossible if your heart is on the blip. So I am praying for a good result. Although the scan was OK a young man was doing it and I found it a bit embarrassing, as you have to be naked from the waist up, its OK for a bloke to have it done but I hope I don’t have to have another one.

AND FOR THE BEST NEWS I HAVE HAD THIS WEEK!

556f8dfdea43be7dcddc63bcc6fe8455I have had some great news this week, a TRANSFORM study is taking place at the Royal Brompton Hospital and the Doctor responsible for it has asked me to get referred to them, they are doing a lot of different things at the moment, so if valves are not the way forward for me, perhaps something else will be. I am so full of hope now that someone will help. And for those of you who question my motives for writing my blog, well, if it wasn’t for this blog I wouldn’t have know Dr Sam! And other people who have this horrible illness would not see that there is some hope because at times it can become a bit overwhelming, not being able to breath is very scary.

What we need next is a few celebrities who might do a recording for COPD and all the funds could be put to research and for making some very ill people’s life a little bit better. But that’s for next year! Firstly, I had to contact my specialist Dr Graham who is lovely and hopefully she will refer me to Dr Sam. This refering to another consultant is not easy and I am not aware of the process very well. All I know is that this is my life and its a life threatening disease and I have to use my instincts and I know this is the right way to go. I had to change my respiratory doctor to Dr Graham 3 years ago and it was the best move I have ever made. It was a bit embarrassing when I saw the other doctor on the ward but like I say if you have a life threatening illness you have to do some uncomfortable things. At the moment the respiratory department in Huddersfield is short staffed and overworked so I am also asking my GP to refer me too, I have an appointment for them tomorrow. There is a piece that I have read about changing your consultant or doctor the link is here, Changing your Doctor?

Hear is a photo of Dr Sam with a patient who he has treated

Jay Nash of Pulmonx with Annette Eiben and Dr Samuel Kemp

A hospital employee has become the latest emphysema sufferer to undergo a new procedure that is offering a lifeline to people with serious respiratory conditions. Former King’s Mill Hospital worker, Annette Eiben from Mansfield, is the latest person to receive endobronchial lung volume reduction (ELVR) treatment using the Pulmonx Zephyr Endobronchial Valve.

Pulmonx Starts UK Clinical Trial at Royal Brompton Hospital and Other UK Hospitals

Endobronchial Valve Trials – Official Valve Trials Site with details of two trials which are taking place the LIBERATE AND TRANSFORM studies.

Click to see  Video report from Glasgow surgeon Mr Alan Kirk and accompanying press release about the success of these valves in Glasgow Hospital – Press Release Jan 2016

Minimally Invasive Lung Valve Treatment Offering Hope to Emphysema Patients see Endobronchial Valve new lease of life for emphysema patients for full details of Dr Kemp and his patients’ success. Trials will be taking place at seven different UK Hospitals. See the above link for all the info and contact details. Or you can contact-

Dr Sam Kemp through his email drsamuelkemp@hotmail.co.uk

The procedure was carried out by Dr Samuel Kemp, a consultant physician at the Mansfield hospital, and Eiben has described the difference to her quality of life as ‘nothing short of amazing’.

The 58 year old has been living with emphysema for several years and prior to having her procedure the simplest of tasks such as drying herself after a bath or reaching for a plug would leave her breathless, not to mention the daily struggle of walking up and down stairs.

And I think all of us with stage 4 COPD will relate to this! Will carry on with the exercising and losing weight and waiting for my appointments to come through. But at least I now have some hope of a better future. This touching ode to Mohammed Ali serves as a reminder that even in the darkest hour, there is still hope. Listen to this song when the going gets tough.

And I’m that little bit of hope / When my back’s against the rope

 

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My Second Appointment at Jimmys

disappointment-signIt has taken me a couple of days to get over this appointment, as it just did not go as I wanted at all. Firstly, I went on my own, I had lost a lot of my confidence in actually going anywhere without my daughter but she was working, so I had to do it alone. And, I did it very well and enjoyed the day out. I was mostly worried about all the walking that would be involved because the car park is quite a long way from the front door and once inside, there is loads of walking to do. I surprised myself and managed quite well with the walking. It was about 400+ metres from the car park to the x ray department and I stopped a number of times but absolutely loved the fresh air it was quite windy and the blow did me the world of good.  Negotiating the centre of Leeds was also worrying me, I hate driving in Leeds its so busy and I was travelling at rush hour. I managed to p*** off a few drivers and got honked at a few times but overall did quite well.

I had my x ray first and then walked back to the Thoracic Surgery Department to see my consultant. By the time I had sat down in the waiting room, it was not long before I was called to see him and I must admit after all that walking I felt so much better, I almost ran in.  However, I didn’t run out, after talking to him for about 10 minutes (a very short time really), I became under the impression that he really was not comfortable about doing endobronchial valves, he didn’t seem to have a lot of success with them. He made up loads of excuses, the first one was my heart.

I have got a stupid arrhythmia the cardiologist said it is not dangerous and shouldRoyalty-free clipart picture of a right itself as it usually does. I have had it for years (palpitations); ever since my son had an accident and fell 25 foot through a roof and was in ICU in Leeds. It normally puts itself back to normal but the last time I had to go into hospital for 4 days so they could get it under control. Now, I am on tablets for a short while and have to have a cardiogram next week just to check everything is fine, so I am crossing my fingers that it is. So, obviously the first thing the consultant talked about was this heart thing and said it needed to be sorted before he could consider the valves. I told him that I had mentioned it to my cardiologist and he had declared me good to go for an operation. Anyway, he wasn’t having any of that at all and moved on to his next objection which was the fact that I wasn’t on oxygen so was not an urgent case. Actually, I found his bedside manner terrible, I was beginning to wonder if his wife had given him a poor breakfast or had a row or something before he came to work. The next objection to the 12301208_878550378906854_74531362_nvalves was the fact that they don’t work for everyone and he didn’t have very much success with them, he also stated that they only lasted for 3 years anyway! He said you will get worse anyway I can’t make you better! Oh blooming heck,  I knew this already did he think I was stupid or something. I just want a little bit of lung function back, I was hoping the operation might turn back time a bit for me; and enable me to do lots of exercise and allow me to go on an upward spiral instead of the downward spiral that I am in at the moment. I must admit I started to cry with frustration because, I know that they last longer than 3 years in the US they stated 10 years but even if you half that for optimism that is 5 years. I just felt that he did not want to do it! He said I needed to do another Pulmonary Rehab Course, I told him that I did a lot of exercise at home anyway and was active. But he said I needed to do a full course which I am happy to do anyway and he also said I had to do a 6 minute walk test. When I asked him what he would learn from that test he didn’t give me a real answer. Just mumbled something I couldn’t understand.download I hate this about some doctors they just don’t explain themselves; but I can remember being guilty of this when I first started teaching. People, need very simple explanations in order to follow unfamiliar subjects. Drawings and diagrams are preferable!

And this is what I like to hear from Doctors someone being positive –

Anyway, the interview ended with me walking out of the room very disappointed and bemused and wondering exactly what had taken place. He definitely was not working on the same page as me. Since I have had time to think about his response, I feel that I need to search for a consultant who has moredownload (2) experience and success with fitting these valves like the guy in the video. That is something I had not thought of before. Its the same as anything, if you were going to have a new conservatory built you would ask about and choose the best builder; but we regularly hand our health over to Drs, Consultants, Specialists who we have no knowledge of at all. We trust that they are the fountain of knowledge and fantastic at their job. Well, I think I will have to think seriously who I trust with what’s left of my lungs, I can’t afford to waste any more. And this experience has in no way deterred me in my mission to find ways to improve my life, I just need to look elsewhere! The fight is not over!!!  Look out for next episode.

COPD and Human Stem Cell Treatment – Is it a dream or reality?

copdChronic obstructive pulmonary disease (COPD) is a progressive lung disease that makes it difficult to breathe. According to the American Lung Association, approximately 11 million people in the United States have been diagnosed with COPD. However, it’s estimated that 24 million people may have the disease and not know it. The two main types of COPD are chronic bronchitis and emphysema. Many people with COPD have a combination of both.COPD causes one or more the following changes in the lungs and airways:

  • The air sacs and airways lose their ability to stretch.
  • The walls of the air sacs are destroyed.
  • The walls of the airways become thickened and inflamed.
  • The airways become clogged with mucus.

These changes reduce the amount of air flowing into and out of the lungs, depriving the body of much-needed oxygen and making it increasingly harder to breathe.

There’s currently no cure for COPD. There are only treatments to improve quality of life and to slow the progression of the disease. However, there’s promising research that suggests stem cells may help treat people with this type of lung disease.

Stem Cells 101

Stem cells are essential to every organism and share three main characteristics:

  • They can renew themselves through cell division.
  • Although they’re initially indistinguishable, they can differentiate themselves and take on the properties of several different structures and tissues, as the need arises.
  • They can be transplanted into another organism, where they will continue to divide and replicate.

Stem cells may be obtained from four- to five-day-old human embryos called blastocysts. These embryos are usually available from an in vitro fertilization. Some stem cells also exist in various structures of the adult body, including the brain, blood, and skin. They’re dormant in the adult body and don’t divide unless activated by an event, such as an illness or injury. However, they are able to create tissue for other organs and body structures, so they may be used to heal or even regenerate, or regrow, damaged tissue. The stem cells can be extracted from the body and separated from other cells. They’re then returned to the body, where they can begin to promote healing in the affected area.

Stem Cells in the Lung

Until recently, it was believed that adult lungs didn’t contain any stem cells. Researchers at Brigham and Women’s Hospital in Massachusetts turned conventional wisdom on its head when they discovered the presence of stem cells in the lungs. In the 2011 study, they cited evidence of stem cells in 12 adult donor lungs and nine lungs from fetuses that had died of natural causes.

These undifferentiated cells were capable of forming different parts of the lungs, including the air sacs and the small airways. When injected into mice with surgically damaged lungs, the stem cells divided to form new lung structures. The structures that the stem cells created were able to combine with and support the mice’s own lung tissues. This discovery opened the door to the possibility of finding new and improved treatments for COPD.

COPD and Stem Cell Treatments

Since the presence of stem cells in the adult lung was confirmed only very recently, there are no stem cell treatments currently available to people with COPD. However, researchers see stem cell therapy as a promising new direction for COPD treatment research. They believe stem cells may benefit people with the disease by:

  • reducing inflammation in the airways, which may help prevent further damage
  • building new, healthy lung tissue, which can replace any damaged tissue in the lungs
  • stimulating the formation of new capillaries, which are small blood vessels, in the lungs, which may lead to improved lung function

Researchers envision that stem cells can one day be used to generate new, healthy lungs in people with chronic lung disease. It will probably take several years of research before stem cell treatment can be attempted in people with COPD. However, if this treatment comes to fruition, people with COPD may no longer have to go through painful and risky lung transplant surgeries. It may even pave the way for finding a cure for COPD.

Further information on stem cell therapy and COPD

Written by Debra Stang
Medically Reviewed by George Krucik, MD MBA on 04 March 2016

Source: COPD and Human Lung Stem Cell Treatment

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