When Money Gets In The Way!
This is not the first time I have had to fight for my benefits and a decentish standard of living, let us face it nothing is as good as going to work, especially if you are losing a professional income.
First, it was ESA (Employment and Support Allowance) which took ages to sort out and I lost over £600 in the process. Once sorted and after literally months of waiting, I thought that everything was ok and stable. AND then what did they do? They brought out PIP (Personal Independence Payment) to replace DLA (Disability Living Allowance). Why did they do this? The whole process of changing over paperwork, staff training etc must have cost a fortune and I know it cost a great deal in bloodshed and tears from the claimants. Was this worth it? I just feel it was the Government, as usual, wasting taxpayers money. All they had to do was tighten up an existing very good scheme.
My first experience with PIP and the assessment process was with my son and I have done a section about this you can read it here, my sons PIP assessment nightmare. This was quite a while ago and I felt with all my experience from my sons’ assessment and also the fact that they would have improved the process because of some big government reviews they had been part of, it would be a slam dunk experience. Was I right NO!
This experience has been made a much more stressful one than necessary. I received my assessment through the post and the same day an altered assessment for my ESA (two bad letters at once). Because they had stopped paying me for some unknown reason the personal care part of my PIP I also lost my Severe Disablement addition to my employment and support assessment. That counts for at least £110 a week cut in my income. A 55% wage cut in fact. I wonder if the government could manage on a 55% cut of next to nothing. So now I have to do a counter letter to them including as much evidence I can of my condition. It’s so blinking degrading this is something they do not seem to understand. The majority of people do not like going on about how ill they are it depresses you. I try to stay positive and upbeat and this does not help when it comes to being assessed so I am now in the process of letting them know how limited my life is with a 24% lung function. The only time I feel normal is sat down and that’s the honest truth, anything more than that and I am breathless and when I am ill, I am breathless just talking. I am also on paliative care and have a DNR set up. I am down for paliative oxygen assessment too. It’s not an easy life having COPD and I feel the government is trying to punish us for being ill. It smacks of the Nazis who thought ill people were a strain on the economy and not worth a life.
I am now going to get on with my PIP mandatory reconsideration and will let you all know how this turns out. I will post as soon as I receive an answer and living on £51 a week will definitely be a challenge until they have completed the new assessment. Hope they won’t take too long.
Have now sent off my PIP mandatory reconsideration. I also sent a query through to my local MP to see if they could help and they said that the DWP is very busy at the moment and it could take a while. Well, whose fault is that!
This PIP MR (mandatory reconsideration), took me all week to write. I also had to ask my GP for a letter which he had ready for me in a few days and he also printed out a letter from my consultant that he had received. He was very helpful and did not charge me a penny for the letter. It took me a full day to counter their decisions on 6 sections. I went through each one stating their reasoning and then mine. It was a nightmare to do and it just makes it worse thinking that I will have to go through this in 3 years time again! So much wasted time and money on their behalf as my illness is degenerative I am never going to get any better, its total madness.
One of the main things that I wanted to mention this week was the ruling for claiming a higher rate daily care or the higher rate mobility component during the PIP assessment process. It seems that there is some confusion about coming off one benefit and going onto another. I have wanted to claim the higher rate DLA now for some months and thought that I would have my claim backdated if I was successful. At the moment I am just in receipt of the middle rate personal care component of DLA. I was under the impression that when my letter came through informing my change from DLA to PIP that if I received the higher rate allowance it would be backdated to when I first applied for my PIP which was March this year. I asked PIP about this when I rang to start the process for my mandatory reconsideration and they said that the claim is not backdated at all if you are successful it will be paid from the second week in September and that I was still classed as being on DLA until then.
I had a good think about the situation and thought if I was still on DLA officially then surely I could put in another claim for the high rate to cover me from March this year to September when my benefit changed to PIP. I immediately rang up DLA to request they start up a claim for the higher rate DLA for these lost months. The lady I spoke to was unbelievably unhelpful. She sounded like a bored secretary, in fact, I would not have been surprised if she had been reading a book while she was talking to me! She informed me that DLA is not doing any further assessments at all and haven’t been doing for some time. So I asked her what was I supposed to do she said that I have a few weeks with my old amount of DLA and that should give me a few weeks to adjust to a lower amount of money. She made me feel that they were doing me a great favour by letting me keep my middle rate care for a further 4 weeks. I could have flipped at that point but I was just so shocked at her complete lack of interest in her job I was left speechless, unbelievable!