I will definitely NOT look back on 2018 with fond memories and longing. 2017 was definitely not a year that I want to experience again. So, I am not going to say anything on this page about my failures of last year. It is so very important to stay positive and although for the first time ever I had to go to my outpatient’s appointment in a wheelchair which made me feel really down I took away a positive experience home with me. My new Consultant (Dr Thomas) is absolutely lovely and you know what he actually listens to you. I really feel he is one of the good ones he actually CARES!! He also said that my chest x-ray is not quite as bad as my FV1 results, I can relate to that because before I got COPD I could only blow about 30% I just cannot blow into that pesky thing. One of the problems I have been having is my heart rate which went up to 160 beats per minute and decided to stay around at that for a while. It is called atrial fibrillation soooo back into the hospital I went. This is a link to a good site which explains about this apparently it is common in people with COPD, so that’s another thing its got me into!! Life in the fast lane. Certainly glad that they could find nothing wrong with my heart they just gave me some tablets and got it back under control. The problem is that if you have asthma there are some procedures that they cannot use to get your heart under control quickly. Was playing this song when I got home it cheered me up a bit so I thought I would share it with you ‘Well you have to have a laugh’ –
2017 has been a year of massive ups and downs, I have never experienced such a bad patch and I can tell you I was scared to death at times. My regular readers will have noticed that I have not updated my page as regularly as I used to and I apologise for that but I have just been so under the weather with one chest infection after the other and 3 hospital admissions since March. Christmas and New Year celebrations went out of the window. It all started in July with a sore throat and …..click to read more COPD – WHEN THINGS GET OUT OF CONTROL
APPOINTMENTS THIS MONTH
I have got my appointments through now for Wythenshaw Hospital and Rotherham Breathing Space. I will feedback to everyone as to my progress with these and any useful information I can feedback to you I will.
NEW YEARS RESOLUTIONS –
One of the main things I can say to you all at this time of the year, with all the New Year Resolutions is if you have not already done so STOP SMOKING!! It is the one major beneficial thing that you can do for yourself. I have some posts on this and the following links will lead you to them and I hope they will help you to Quit like I have done.
DON’T FORGET YOUR FLU JAB!!
FEATURED POSTS – SEE LEFT SIDE PANEL FOR OTHER POSTS
COPD – WHEN THINGS GET OUT OF CONTROL
How to Manage Your COPD Like a Respiratory Therapist – Part 1 and Part 2 this is a great piece by My COPD Team which is a social network for those living with COPD.
My trip to see the Wigan Warblers and the COPD Athlete – Includes reversing the downward spiral
MY PIP EXPERIENCE – A complete fiasco!
Lung Reduction Surgery, Valves, Coils and Further New Developments
The 10-Step Program – does it work? – GREAT BOOK
A Short Walk a Day Helps COPD Patients Stay Out of the Hospital
TVs Nadia Sawalha Highlights the Struggle COPD Sufferers Have Every Day
BREATHING SPACE ROTHERHAM – Appointment on the 27th January
BreathingSpace in Rotherham improving mortality rates and quality of life for people with COPD and only 23 miles from me! And I am going in January.
The attraction to Breathing Space for myself is the fact you can stay in for a few days which I feel is preferable to the odd hour twice a week for 6 weeks which we are offered in Huddersfield. Then you can exercises safely and regularly every day for a short period just what I need to get me going. It will be a good boost.
Why didn’t I know about this before?
BreathingSpace was conceived to provide the UK’s leading, and possibly the world’s largest rehabilitation service for people with chronic obstructive pulmonary disease (COPD). The funding was obtained through a partnership between the Coalfields Regeneration Trust (CRT) and Rotherham Primary Care Trust (PCT) with the support of Rotherham Borough Council.
They provide the following services:
- Pulmonary rehabilitation (a breathing exercise and education programme) – six week outpatient programme
- 20 inpatient beds providing care during acute episodes
- Full oxygen assessment service including assessment for ambulatory oxygen
- Lifestyle and education sessions
- Smoking cessation support and advice
- A residential breathing exercise and education programme (up to seven days)
- Respite care for people with a known respiratory condition (up to seven days)
- Hospice care for appropriate people with chronic respiratory disease
- Education for all involved in caring for people with COPD and other respiratory conditions
- Support to health care services in the management of patients with COPD and other respiratory conditions, including support with early supported discharge and admission avoidance
- 24-hour helpline for patients, carers and healthcare professionals
WITHENSHAW HOSPITAL – MANCHESTER
Withenshaw Hospital is situated in Manchester and is a fantastic hospital for people with COPD and Asthma. This is the hospital that I have an appointment with these guys on the 27th January.
Keep fighting there is no other way with this illness. Don’t just sit back and think things will get better. The following is a link to a two-part post which I have edited from My COPD Team which gives you ideas how to do this. See – How to Manage Your COPD Like a Respiratory Therapist – Part 1 and Part 2.
NO MATTER HOW PAINFUL DO YOUR PULMONARY
WHAT MOTIVATES YOU ON A BAD DAY? – Some of my biggest motivators!
MUSIC – THIS IS SO GOOD FOR THE LUNGS
What keeps me going with this illness on my bad days when I am stuck in is MUSIC and my taste is very diverse. From the tacky to the classics. I discovered YouTube and all the free entertainment, just a click away. I have always loved singing even when I am told I can’t sing by my family (so cruel). Music has always been a big motivator for me, it has also been proven to be a great exercise for the lungs. Hey Google it, and see what you find! In the meantime sing along with one of my favorite songs below.
CHILDREN AND GRANDCHILDREN I AM SO THANKFUL TO HAVE THESE LITTLE PEOPLE IN MY LIFE!
My children and my Grandchildren are my greatest motivators. They enrich my life so very much you just can’t feel sorry for yourself when those little faces are about. Its awesome when you think you have created all these people!
She has really given me some perspective over this illness she has pulled me up and yes at times ground me down However if it hadn’t been for her perseverance I don’t think I would have been able to give up the Cigs and stick to my diet and exercise. She showed me I could do it and I couldn’t let her down now could I?