In order to mold his people, God often has to melt them – Amish Proverb
I really thought that 2017 had been a bad year but this year has proven to be a trial already and we are only into March! Snow has completely spoilt this month the air has been heavy and cold keeping me indoors most of the time. The temperature being -5 some days. It really does not help your breathing. I also had a very important appointment at Wythenshawe Hospital coming up and had to cancel that because of the driving conditions. However, a replacement appointment was sent to me for the 16th of March so I was very lucky at being able to see the good Professor Denning this is a link to his research on the fungus infection Aspergillus. The drive was terrible I had to put up with 10+ miles of freezing fog and I could not see a hand in front of me, but no snow so that was a blessing. I knew I had to make this appointment which in itself turned into a BAPTISM OF FIRE! Why? Because of being indoors so much this winter I was very out of condition and the walking to the outpatients, car park etc was a real problem. Need to do some exercise like these ladies it is so true if you don’t use it you lose it!
The appointment, however, was fantastic and Professor Denning was very knowledgeable. As usual, I acted like a dummy and couldn’t remember a thing my brain kept going blank. Thank goodness I had printed out all my meds at least I did not have to remember those. The conclusion of my appointment was to jig about my meds so that I could take the anti-fungal meds safely and 5 days into my new regime I must admit that my asthma is now settling down. He was a very busy man that day and I do not know how he manages to see all the patients that he does. No wonder he was running 2 hours late. I had a lot of blood tests and a sputum test while I was there and have to go back for a lung function test. Have lost 15lb altogether now and I have to lose more as apparently if you are overweight your asthma is not so stable and I really do not want to go into hospital again. He was very candid about my weight and this will keep me on a diet.
WYTHENSHAWE HOSPITAL – RESPIRATORY DEPARTMENT
My Doctor referred me to Wythenshawe Hospital because my COPD and Asthma was becoming very troublesome and complex with a lot of flare-ups and during some of my hospital stays they had found weird infections in my sputum. I am so pleased that I was transferred over to them now.
The North West Lung Centre at Wythenshawe is an internationally renowned specialist centre for the treatment of respiratory conditions and allergies, the largest in the UK and probably in Europe. This is a partnership between the University of Manchester and UHSM NHS Trust. The hospital has a fantastic respiratory department with over 40 respiratory consultants at hand and 10 Clinical Academic Professors at the University of Manchester and six respiratory wards. Hope now that 2018 will go more smoothly.
2017 was a year of massive ups and downs, I have never experienced such a bad patch and I can tell you I was scared to death at times and it stopped me from posting regularly on my blog. It all started in July with a sore throat and …..click to read more COPD – WHEN THINGS GET OUT OF CONTROL
SUMMER RESOLUTIONS –
One of the main things I can say to you all at this time of the year, with all the New Year Resolutions is if you have not already done so STOP SMOKING!! MAKE IT YOUR SUMMER RESOLUTION. It is the one major beneficial thing that you can do for yourself. I have some posts on this and the following links will lead you to them and I hope they will help you to Quit like I have done.
FEATURED POSTS – SEE LEFT SIDE PANEL FOR OTHER POSTS
COPD – WHEN THINGS GET OUT OF CONTROL
How to Manage Your COPD Like a Respiratory Therapist – Part 1 and Part 2 this is a great piece by My COPD Team which is a social network for those living with COPD.
My trip to see the Wigan Warblers and the COPD Athlete – Includes reversing the downward spiral
MY PIP EXPERIENCE – A complete fiasco!
Lung Reduction Surgery, Valves, Coils and Further New Developments
The 10-Step Program – does it work? – GREAT BOOK
A Short Walk a Day Helps COPD Patients Stay Out of the Hospital
TVs Nadia Sawalha Highlights the Struggle COPD Sufferers Have Every Day
BREATHING SPACE ROTHERHAM – Appointment on the 27th January AND WHAT A WASTE OF TIME THIS WAS SO DISAPPOINTING
BreathingSpace in Rotherham improving mortality rates and quality of life for people with COPD and only 23 miles from me! And I am going in January. All the effort of getting there was not worth it and a total waste of my time.
The attraction to Breathing Space for myself was the fact that you can stay as a residential patient and carry out a 6 day program of rehabilitation which I feel is preferable to the odd hour twice a week for 6 weeks which we are offered in Huddersfield.
This is just what I need to get me going I thought! I found however in the end that this was not true. You can see from the following services they provide that I have copied below from their website, they have a residential breathing exercise and education program (up to seven days).
However, this was not the case when I went for my appointment and they didn’t understand where I had come across this idea. I told them ‘IT IS FROM YOUR WEB SITE’. So I went home feeling very deflated and confused.
They provide the following services:
- Pulmonary rehabilitation (a breathing exercise and education programme) – six week outpatient programme
- 20 inpatient beds providing care during acute episodes
- Full oxygen assessment service including assessment for ambulatory oxygen
- Lifestyle and education sessions
- Smoking cessation support and advice
- A residential breathing exercise and education programme (up to seven days)
- Respite care for people with a known respiratory condition (up to seven days)
- Hospice care for appropriate people with chronic respiratory disease
- Education for all involved in caring for people with COPD and other respiratory conditions
- Support to health care services in the management of patients with COPD and other respiratory conditions, including support with early supported discharge and admission avoidance
- 24-hour helpline for patients, carers and healthcare professionals
Keep fighting there is no other way with this illness. Don’t just sit back and think things will get better. The following is a link to a two-part post which I have edited from My COPD Team which gives you ideas how to do this. See – How to Manage Your COPD Like a Respiratory Therapist – Part 1 and Part 2.
NO MATTER HOW PAINFUL DO YOUR PULMONARY
WHAT MOTIVATES YOU ON A BAD DAY? – Some of my biggest motivators!
MUSIC – THIS IS SO GOOD FOR THE LUNGS
What keeps me going with this illness on my bad days when I am stuck in is MUSIC and my taste is very diverse. From the tacky to the classics. I discovered YouTube and all the free entertainment, just a click away. I have always loved singing even when I am told I can’t sing by my family (so cruel). Music has always been a big motivator for me, it has also been proven to be a great exercise for the lungs. Hey Google it, and see what you find! In the meantime sing along with one of my favorite songs below.
CHILDREN AND GRANDCHILDREN I AM SO THANKFUL TO HAVE THESE LITTLE PEOPLE IN MY LIFE!
My children and my Grandchildren are my greatest motivators. They enrich my life so very much you just can’t feel sorry for yourself when those little faces are about. Its awesome when you think you have created all these people!
She has really given me some perspective over this illness she has pulled me up and yes at times ground me down However if it hadn’t been for her perseverance I don’t think I would have been able to give up the Cigs and stick to my diet and exercise. She showed me I could do it and I couldn’t let her down now could I?